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Neurofibromatosis

Clinical Trials

Neurofibromatosis Protocol Information

All Clinical Trials Information

Protocol Number Title Study Status PI Website Section
Phase 1
11C0161 A Phase 1 Study of the Mitogen Activated Protein Kinase Kinase (MEK) 1 Inhibitor AZD6244 Hydrogen Sulfate (Selumetinib Sulfate) in Children with Neurofibromatosis Type 1 (NF1) and Inoperable Plexiform Neurofibromas (PN) Currently Accruing Widemann, Brigitte
Link Pharmacology and Experimental Therapeutics
Neurofibromatosis
Phase 2
08C0130 A Phase II Trial of Peginterferon alfa-2b (Pegintron) for Neurofibromatosis Type 1 Related Unresectable, Symptomatic or Life-Threatening Plexiform Neurofibromas  Currently Accruing Widemann, Brigitte
Link Neurofibromatosis
12C0058 A Phase II Study of Everolimus (RAD001) for Children with Neurofibromatosis Type-1 and Chemotherapy-Refractory Radiographic Progressive Low-Grade Gliomas Currently Accruing Warren, Kathy
Link Neuro-Oncology
Neurofibromatosis
12C0148 SARC016: Phase II Study of the mTOR Inhibitor Everolimus in Combination With Bevacizumab in Patients With Sporadic and Neurofibromatosis Type 1 (NF1) Related Refractory Malignant Peripheral Nerve Sheath Tumors Currently Accruing Widemann, Brigitte
Link Pharmacology and Experimental Therapeutics
Neurofibromatosis
Natural History
08C0079 Natural History Study and Longitudinal Assessment of Children, Adolescents, and Adults with Neurofibromatosis Type 1 Currently Accruing Widemann, Brigitte
Link Neurofibromatosis
14C0113 Effects of an Internet Support Group for Parents of a Child with Neurofibromatosis Type 1 Currently Accruing Peron, Staci
Link Psychosocial
Neurofibromatosis
Other
07C0110 Analysis of Stored Data Collected from Individuals Administered Neurobehavioral Assessments on IRB-approved Protocols Currently Accruing Wolters, Pamela
Link Psychosocial
Hematologic Diseases
Gastrointestinal Stromal Tumor
Hematopoietic Stem Cell Transplantation
Medullary Thyroid Carcinoma
Neuro-Oncology
Neurofibromatosis
Solid Tumors
12C0160 Validation of the English Version of the Pain Interference Index and the Pain Rating Scale in Children, Adolescents, and Young Adults With Chronic Illness and Their Parents Currently Accruing Peron, Staci
Link Psychosocial
Neurofibromatosis
Solid Tumors
Hematologic Diseases
14C0079 An Exploratory Study of Voicing My CHOiCES as a Tool for Advanced Care Planning in Young Adults with Metastatic, Recurrent, or Progressive Cancer Currently Accruing Wiener, Lori
Link Hematologic Diseases
Medullary Thyroid Carcinoma
Neuro-Oncology
Neurofibromatosis
Solid Tumors
Psychosocial
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